Okay, so the picture is a little harsh that I posted with this Blog post (at the bottom of the page), but I think it gets the important point across. Haha! :-)
What is the old saying, “Don’t judge a book by its cover”? Well, it is true with most autoimmune diseases too, they are often called invisible diseases. Therefore, the average person maybe tends to discredit the debilitating and painful issues that we can go through. I think our minds conceive an “issue” if you can see it – for instance, a wheelchair, a cast, a cane something that is visible and obvious. When in fact, some of the most horrendous days I have had no one would even from the outside looking at me possibly know it. I have even had people state to me “Oh you look great, so you are all better?” I just smile and say “I am having a decent day” – but they don’t know it might have taken me 4 hours to get ready because I could barely stand up in the shower or I have to take breaks in between drying my hair or putting on my makeup. I know there are very visible signs that can occur (shingles, migraines with eye swelling, inflammation, arthritis, hair loss, weight loss/weight gain, etc.) but the invisible ones are just as horrific. You can’t see with Lupus SLE that there can be organ involvement (brain, heart, lungs, kidneys, liver, etc.) going on that can be life threatening at times during a flare-up and these certain areas are being attacked.
I guess the main thing I wanted to touch briefly on is: Don’t ever underestimate because you can’t SEE something wrong, that things are fine with someone. Get to know them, get to know autoimmune diseases and educate yourself. I am sure there is someone that you know of personally that struggles with things that no one sees, but trust me it is very REAL in their daily life. Most sufferers are not looking for your pity; just a little understanding would be awesome :-)
Thanks for reading,